Ehlers-Danlos syndrome? Possible diagnosis

So, my primary care provider told me today that I most likely have Ehlers-Danlos syndrome hypermobility type which is a connective tissue disorder that affects the skin and that it is translucent and stretchy, but it also affects the joints because they are hyper mobile and move in ways they shouldn’t causing frequent subluxation and sprains. This along with pots makes for a very difficult time. These are both chronic illnesses. Looking for support in anyway I can get it.

4 Replies to “Ehlers-Danlos syndrome? Possible diagnosis”

  1. I also just learned I have EDS. It’s funny how such an easy to identify genetic disorder is missed through to adulthood. Good luck going through the diagnosing process and everything else.


  2. Still waiting for my diagnosis, just take it easy and spread awareness 🙂 you can pick up some good medical braces from amazon! Eat healthy and exercise when you can to strengthen the muscle around your joints to help keep stuff in place! Sending prayers! 😊

    Liked by 1 person

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