Productive electrophysiologist appointment yay!

so today we saw the electrophysiologist. It was a very productive appointment. He’s starting me on Floren f. It’s a medication to help retain salt and water to help with the blood pressure. He also wants me to see an Ehlers Danlos syndrome specialist. He’s taking labs in like 3 weeks to check my electrolyte levels. i have to try the dose I’m starting on for a month, and if that doesn’t work, then we will raise the dose. Then we give that another month to see if it works. If it doesn’t, then we either try a med called Midadrine or do a tilt table test. I’m going back to see him in three months. He said the ED played a part in this. He said I most likely had POTS. He doesn’t know why I’m going to a neurologist. I now have to find an EDS specialist who takes Medicaid. Let the hunt begin!!! oh boy. Ray

6 Replies to “Productive electrophysiologist appointment yay!”

  1. I know many with POTS that have tried those medications and they helped.
    I hope you are feeling less symptoms with the medications. My neighbor was just diagnosed with POTS too and it is helping her

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    1. Some days it helps, and some days it doesn’t. It was helping while I was in the hospital, but that was because I wasn’t doing the work that I would normally do in my apartment. Just from picking my cat up yesterday, my heart rate was 156.
      Ray

      Liked by 1 person

      1. I saw your dad had commented on one of your facebook posts. Does he ever come around and help you? I know of someone who was just put in the hospital in the psychiatric ward and they sent him home as soon as they did with follow ups with a pscychiatrist but they don’t seem to want to keep anyone for more than a few days. Just get them the basics of care and send them home. It looks that way for everyone unless they are in a long term care home or nursing home

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