appeal letter from HFS

So I got a letter in the mail from HFS saying I had an appeal on March 3rd at 10 AM and if I didn’t answer the phone, the appeal would be dismissed. Megan doesn’t know why we got this letter as the appeal they filed was with Morgan County, not with HFS. I swear if HFS screws this up, I could scream. I think I’ve found a place that will accept me even if we have to get a feeding tube. It’s called the Emily Program in Minnesota. They were very understanding about the gastroparesis. They have to talk to their clinical team to see if they can accommodate me. I really hope they can. So I’m talking with Megan today at 2, and hope we can get things figured out, because I’m thoroughly confused!!!

Ray

from Eliza TW trauma and sexual abuse

TW trauma

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Hi, it’s Eliza. I’m 14. I hate memories. I hate trauma. I hate that I have to remember all the things my father did to me. I hate feeling like I’m there again. The memories of being sold to all those men and having to unload my dad’s drug shipments that he got after I was raped repeatedly, over and over and over again, day after day. I hold so so many memories that the others don’t know about. Just don’t want to keep remembering this stuff.

Eliza 14

appointment yesterday: trigger warning: medical

Trigger warning medical.

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So, we had an appointment with a nurse practitioner yesterday. She said the only thing she could really do is prescribe ensure.. She said she could try to move our dietitian appointment to an earlier date. We see the dietitian on March 9. We are doing everything we can, but it is still not enough. She also said, “you won’t lose that much weight in a month.” She said, "your weight is stable." I asked her how she knew we wouldn’t lose more weight in a month. She didn’t really have an answer. She says there is nothing she can do until I see the G.I. doctor. She said that there were probably other treatments for gastroparesis that I did not know about. I was just very frustrated by the end of the appointment. She couldn’t give me any direction on when I should go to the hospital for my weight.

Ray

me wants choclate

me wants choclate but it makes our tummy hurt. me really really wants choclate!!!! not fair! why tumy hav to be hurting? why jus why?Lila

Spoke to our primary care providers office yesterday trigger warning medical

Trigger warning medical not sure……So, yesterday, we called our primary care providers office and asked her for help. We asked if they could place an NJ tube, but she said that she could not do that. She had said we had to wait for the G.I. consult on March 20. She wants us to drink three protein shakes per day diluted with water to make them easier to swallow as well as eating three full-size meals per day. This is nearly impossible. We can barely manage some days to eat some applesauce and some chicken broth. Why can’t we just get help? I also found out why I haven’t been seeing my dietitian. My primary care provider never sent in a referral to her when I switched providers. So I have not seen her since January 7. I called her and asked her for her advice yesterday, and I asked her if she could prescribe a feeding tube, and she said if it was eating disorder related, maybe. She told me to also wait for the G.I. consult. I am just getting so frustrated at this point. I just need nutrition! Dammit!Ray

Brave

Trigger warning: trauma

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We are all so brave. We survived so so much. We are all shining lights for the rest of the world. Our scars make us beautiful. They tell our story, but they don’t define where we came from. Our scars make us beautiful.

Ray

results of gastric emptying study

I just got the results of my gastric emptying study, and after 240 minutes or 4 hours, I had 82% food contents left in my stomach. I’m kind of shocked!! So, I have severe gastroparesis.

Ray

ultrasound today TW medical

Trigger warning: medical

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Hello everyone,

Sio, today we have an unnecessary ultrasound to do that Meridian wanted done before they would cover the CT scan that my doctor ordered. I basically had to come to Springfield to have this done. So I brought my computer along to do some work, and left Eden at home, happy and eating his food. I love him. I don’t have a worker today so it will be a day of relaxing until 2:00 PM when we have therapy.

Ray

So, I was diagnosed with H-pylori. I have to start a two week course of antibiotics which I’m really not looking forward to. They had to switch one of the anabiotic‘s to use, because of an allergy. They also had to get prior authorization from my insurance for the one that they had to switch to. I have to take them four times a day, and one of them I have to take two tablets of.