TW medical and doubt. . . . . . . . . hello everyone,so i’m wondering if we are expecting to much from our therapist. are we expecting to much to ask her to educate herself genericabbly or even briefly about the physical conditions we deal with? i dont know. I just feel like i’m asking to much. its just that sometimes during a session, we spend a lot of time just educating her on things like EDS and chronic pain and how our digestive issues aren’t just about trauma and programming and or eating disorders. is it wrong that i’m frustrated? i dont feel like i have the right to be frustrated. she assumes that if we need the feeding tube that we will only need it to get through processing trauma. She also doesn’t agree with the ARFID diagnosis, but our psych APN does. i  just want professionals to agree about what’s going on with us!!! i just feel like we are to much for professionals to deal with at all. and when people doubt our illnesses because they say we’re to young to have so many problems. just feeling so confused and alone.Ray   

Trigger warning medical

TW medical . . . . . . . So, I spoke to Alsana today, and they do not take people with feeding tubes. They said if i got a feeding tube, I would need a higher level of care. I also spoke to Eating Recovery Center, and they said that they do feeding tubes on a short-term basis. So, basically, if I needed a feeding tube long-term because of gastroparesis, no place would accept me. So once again, we don’t fit into a box of criteria. So why even try to get into treatment? Also, Medicaid is coming up with a list of places they believe will meet my needs, and they are giving that to Meridian next week, so we don’t even get a choice in the places they choose. Everything just feels out of my control!!! Eating disorder programs don’t understand chronic illness, and I was even told by Alsana that in eating disorder treatment programs, you have to eat food, and if I went there, they would need a menu of foods from my GI team that I could eat, because i couldn’t have a tube during programming. The thing is, I can’t take the only motility med they prescribe which is Reglin. She also said that people on feeding tubes are just existing, not living. I’m half tempted to ask Megan to stop pursuing the eating disorder treatment. Ray