Venting about medical stuff trigger warning mentions weight

I’m going to vent. Just warning you.

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So, I had my appointment with my G.I. doctor on Wednesday, and he wants to place a feeding tube. I can’t try any of the motility meds for gastroparesis for various reasons. Dietary modification is not working. He made a referral to interventional radiology who said they would not place it right now because of the coronavirus. The i’m just at a complete loss as to what I am supposed to do because I am in a course right now and I’m having trouble concentrating on my work. Does anyone have any advice? Feeling alone lost and frustrated!stay at home order for Illinois is extended through May 30, and my labs are crap, and I’m 5 feet four and 88 pounds. I need a way to get nutrition! I have severe gastroparesis, and at four hours, I had 82% food retained. I can’t tolerate the nutritional shakes, and can do liquids at best, but not even very much of those. I also have POTS and EDS. I saw my geneticist yesterday for the first time, and she wants me to get the feeding tube as well. Also my autonomic specialist does too.

from Alison

Hi its Alison, and im 9. Im watchin a video. I love kitten videos. Im tryin to stay distracted. I just want rainbows and unicorns not bad stuff.

Alison

TW stuffs from littles ear pain

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My ear herts. Im not sure why. Ttink something to do wif our eardrum. Reminds me of wen mommy putted a ring in my ear but don’t know why she do that. We not hear good wif that ear. It is the left one. Me no lik be in pain. No see doctor until June fir it. Not good. Not wanna herts. Not feels good.

Littles

from Mimi

hi its mimi. i luv da kitty. he bes so cute. he luvs me so so much. he be so soft. he lik be petted.

Mimi

our stomach issues TW medical from Myra

TW medical and trauma

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Hello everyone,
It’s Myra. 
We’ve had stomach issues since we were about 16. When we lived with our aunt when we were 17, we threw up after a lot of times when we ate. We were under a lot of stress, so I’m not surprised. I’m pretty suffe we’ve been dealing with gastroparesis since we were a child. We also found out that we may have reverse motility issues to, because at 4 hours of our gastric emptying  study, we had 82% ofthe food left in our stomach, but at 3 hours, there was 81% left which says our intestines don’t work as they should. We want to go to Cleveland clinic, but lack the fudding. Does anyone know a way we can do a fundraiser for medical needs? We just want answers!!! We just want some hope. 
I’m tired of feeling sick. thanks for reading.
Myra