endocronology appointment

So, I went to the endocronologist, and even though my dexa scan showed severe osteoporosis, she said that she didn’t think it was true osteoporosis because I’m not a post-menapausal woman. She said they listed T-scores and not Z-scores. She basically said that she couldn’t help me because my case wasn’t a true endocronology case and that I should look for a genetic reason for it. She also said that it could be caused by my gastroparesis or just be a resulq that of my EDS. She isn’t willing to give me the meds for osteoporosis until I can get a definiative answer on whether this is osteoporosis. She is referring every to an endocronologist who specializes in bone health. She said the only lab that was off was my vitamin D. I’m just so confused….

Raych;

medical TW feeding tube formula issues and dissociation

TW medical and dissociation
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hi everyone,
we are struggling today. we are bloated because of our formula. we’ve been switching like crazy. Time loss and PTSAID is at an all-time-high. We are not dissociating when we are actually out as we started a new med called Neltrexone. It helps with chronic pain and staying more present when each of us is out. we have a chronic ear infection that we have aro be on eardrops for. Just stressed. Our dietitian isn’t listening to us either. She wants us to vent our G-tube three times a day. we don’t want to be on TPN…
Nicole 20

food on my mind ⠞⠙

Hi everyone, I’m really struggling today. I miss food so much today, but I’m dealing with bloating today because of my gastroparesis. I love food, but it doesn’t love me. I just hate this dicotomy… I just want to be normal.

Ray