Nausea is so so frustrating!!!!

I hate nausea. It is o frustrating!!! I hate it so so much. It comes naturally with gastroparesis, but it is so frustrating. I had to vent my tube this morning because of it. Ugh!!!! I hate this disease!!!

Ray

Medical worries

Hello everyone.

I’m struggling with my feeds. I can only do 35ML per hour and my goal was 80. I’m far from that. We found out that it is just my body not tolerating the rate of the formula, not the formula itself. This is frustrating because I don’t want to have to do another admission to get things fixed again. Hoping we can avoid TPN because it has it’s own risks. Hoping I can get some relief soon and that my body will hopefully begin tolerating the formula at a higher rate. Hope everyone is well.

Ray

Gastroparesis tribute

Hello everyone,

So, on April 1, Amy Lee Fisher, a well-known YouTube or and chronic illness warrior/advocate passed away due to the complications of her conditions. Amy suffered with Gastro paresis, POTS, Ehlers Danlos syndrome, hypokalemic periodic paralysis, and she was TPN dependent due to her G.I. tract failure.

 

Amy will be greatly missed in the community, and her death has greatly affected me. She will always be remembered as the first person who’s videos I watched when I got my first feeding tube. She is the one who taught me to put on makeup with my nasal tube. She will always be out, and her legacy will always live on.