So, I had my G.I. appointment on Wednesday, 19 May. We are keeping my feeding tube rate the same as the doctor said that with my bloating currently it would be impossible to increase my feed rate. We also discussed starting an antibiotic that would target the gases in the G.I. tract that causes bloating. The antibiotic stays in the G.I. tract and does not enter the bloodstream. My insurance also approved Motegrity. It is a medication that is supposed to help things move through my bowels. I hope this medication helps, and I hope my insurance approves the anabiotic that they want to start me on. Hope everyone has a good day and thanks for reading.
I’m still struggling to tolerate my feeds. This is frustrating as I do not want to end up on TPN (total parenteral nutrition) gastroparesis is not a fun condition to live with. It literally translates to stomach paralysis. Chronic illness can sometimes be frustrating.
I’m grieving the life I once had. The life where I could eat anything I wanted. Where I could just go to the fridge and get whatever I wanted to eat or drink. It’s almost been a year since I got my first feeding tube, and although I love my tube and it has given me my life back, I still miss the days of just eating.
I don’t like relying on a central line to stay hydrated, but at the same time, I’m thankful for it to, because it keeps me out of the hospital,
I miss the life I had before needing these medical devices, but I’m also thankful for these tools that have enabled me to continue living my life to the fullest. Though there may be days where I don’t tolerate my formula like now, I hope and pray that eventually a solution will be found. I don’t like being hooked up to tubes all the time, but if that’s what it takes to keep me alive then that’s what I will do. I’ve had to learn to be radically excepting and just except that this is how things have to be. Oh how I wish there was a cure for my conditions, but until that day, I will be ever grateful for my feeding tube and central line as tools to help keep me thriving and surviving.
I’m so excited. My friend gave me a new MacBook Pro for editing my YouTube videos!! Yay! It’s an older one, but it will do the job.
So excited for this.