Frustrations with the healthcare system

Trigger warning eating disorder and I don’t know what else
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So, I spoke to my care coordinator, Courtney, at the insurance company, and she said that as long as the state isn’t forcing them to pay for anything, they’re not going to. She said residential treatment will not be covered no matter what we do. She said I was going to have to find intensive outpatient or partial hospitalization program options. I told her that the closest one was two hours away, and she said, “well we provide transportation. “ I told her that that was not the point, but partial hospitalization was not clinically recommended by anyone on my team. I said to her, “do things have to get really bad before insurance will do anything? Or are they just going to let me die? I know my providers won’t allow that to happen, but still, I still wonder this. Why does the insurance have to govern the treatment we get when they are not even the professionals on my team? It doesn’t make sense. I don’t want to have to get down to 89 or even 85 pounds and have to do this continuous loop From inpatient directly back to outpatient, skipping three levels of care, but I really don’t see that we have a choice. As long as money hungry people are in charge of making the decisions about what they will cover for my healthcare, then I feel powerless. This is beyond my insurance company at this point. It is at the state level. I don’t understand why the laws in Illinois aren’t protecting us from this cruelty and depravity. It doesn’t make sense! Not only that, but my physical health problems are being blamed on my mental health. Eating disorders don’t cause hypermobile joints or scoliosis or any of the other symptoms of idiots that I have which doctors refuse to diagnose because insurance again won’t cover genetic testing. Insurance won’t cover my prosthetics to be replaced which I’ve had for 10 years. I don’t understand what I have to do to get the healthcare I deserve as a US citizen. I feel like I’m fighting for everything I’m asking for. I fought to have us recognized as a system. We have been fighting insurance for over two years at this point. Can’t even go to the doctor for a physical health issue without them saying that I need to get the Mental Health treated first before they can help with the other stuff. I probably sound like I’m complaining too much. I should be grateful that I’m alive.
Ray

just my thoughts

hi everyone,

My name is Chasity. i’m 15. I don’t know why i’m stuck out, but here i am. so i thought i’d say a little about me. i love pop music. i love the color hot pink, and i love to sing. What do you all like to do?

Chasity

Ciella in therapy

Hi everyone,

It’s Ciella.

So Friday in therapy, Lily was talking to me on Zoom, a video conferencing platform, and she saw our shirt, and she thought it said allergic to Mommys, but it said allergic to mornings. I pointed this out to her, and she said, “well, guess I have bad eyesight,” and I said, “not as bad as mine.” We laughed for like 5 minutes straight. It was hilarious. We love her so much!

Just thought you could use a laugh for the day. 😊

from Emmie TW eating issues

TW eating issues

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Hi its Emmie. I hate food. I hate eating. I hate what it does to my body. I hate the memories of the stuff that was done to me. I want the body to look like me, like a 12-year-old. I don’t want to lose weight to be thin, I want the memories to stop. I don’t think I deserve food. What was done to me, hurts… like crazy… the memories are a lot. Ugh!! Do people get this? It’s not an eating disorder, it’s a trauma symptom. Maybe im overthinking this.

Emmie

treatment…. never happening…. trigger swear word

Trigger swear word

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Trigger warning swear word

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So, I called a few places to plead my case and to ask if they had financial assistance, and told them we had a state based medical program, and you know what they said? They said that since we had and qualified for state insurance programs, we didn’t qualify for their financial assistance program even though our insurance didn’t cover their program. What a load of crap!!! So because of my economic status, we can’t get treatment, because we’re not privelleged enough to be upper-class citizens of America. Ugh!! Damn it!!!

Ray

A SLEEPY LACEY

HI EVERYONE IT’s LACEY. I’m VERY VERY Tired. I’m TRYING TO STAY AWAKE. IT’s REALLY HARD. THINK I MIGHT JUST SUCCUMB TO SLEEP. THINK I NEED IT. CAN’t KEEP MY EYES OPEN. GOODNIGHT WORLD.

LACEY