So I went to my doctor on Monday, and he said that my weight was stable… BMI is 15.5. He said he’d see me in two months.
Also, had a conversation with my caseworker, and she said, “your dietitian isn’t going to let you die.” I told her it’s not about “letting” me die. There are things with eating disorders that can’t be seen visibly with like labs and stuff. She also takes things so personally!!
My doctor didn’t take labs, and hasn’t since June. He’s not taking them again until he sees me in two months. I just don’t know. Guess I’ll just wait for nothing to happen. I’m trying to eat. I really am, but it feels impossible. Any support would be greatly appreciated.
So, today has been hard. My POTS is flaring up again. I woke up this morning, and I checked my pulse, it was 69. I got up and went to make breakfast. All I did was put it in the microwave. Within 15 minutes of standing, my heart rate was 161. I had woken up at 10:15 am, but by 2, I was tired and had to go to sleep again. I only woke up about an hour ago. POTS is so frustrating to live with. I go to the cardiologist on Monday to get a second oppinion about it. If anyone has any advice on dealing with this condition, please help. I’m taking in extra salt and as much as I can. I also have an eating disorder. Thanks for reading.
So, my primary care provider told me today that I most likely have Ehlers-Danlos syndrome hypermobility type which is a connective tissue disorder that affects the skin and that it is translucent and stretchy, but it also affects the joints because they are hyper mobile and move in ways they shouldn’t causing frequent subluxation and sprains. This along with pots makes for a very difficult time. These are both chronic illnesses. Looking for support in anyway I can get it.
So, I have my echo today. Hopebblly, nething is wrong. I won’t get the test results back for a while. lly, I can still wear lotion and stuff like that. does anyone have any tips for showering, cleaning the house, and cooking when you have POTS? Have a good day, and thanks for reading.