Is it ok?

What more can we do to get the treatment we need? What more can we do that we haven’t already done? Is it ok that we’re struggling with food and stuff and trauma right now? Is it ok or understandable that we aren’t making a lot of progress? Just feeling so defeated…
Ray

Trigger warning eating disorder late night thoughts

Trigger warning: eating disorder tttttHello everyone,So just having some late night thoughts. Just thinking about treatment, and how it’s not even been a month yet, and we’re already struggling and almost back to pre-inpatient weight. I feel like a failure.. i know recovery is not leniar, but i still feel like i should have been able to keep things together longer than 3 weeks. i just feel like i didn’t try hard enough. i feel like i’m failing at recovery. this is just so hard. if we have to go back to inpatient, none of our issues will be addressed and we will end up in this same situation when we get back home. I’m just getting tired of this cycle. i just want to recover!!! Ugh!!! i hate anorexia. we’ve had it for 19 years!!! They say recovery is harder after 7 years of the illness. Why do things have to be so hard??Ray

Home from inpatient

We are home from inpatient. We are already struggling. Some others inside are already using behaviors. We contacted a residential treatment center who has worked with our insurance before, and when we told them that we were discharged straight back to outpatient with no one who specializes in eating disorders, they were completely flabbergasted. They said we never should’ve skipped three levels of care. We are going to be seeing a therapist who specializes in eating disorders online. We will take anything we can get at this point, because even she says we are still any vulnerable. With our health. We were only there for 2 1/2 weeks. We made a lot of art pieces while we were there. We liked the art therapy and the dance movement therapy, but we were not allowed to talk about why we were struggling with meals because it was trauma related. We were not allowed to be ourselves there. I guess we did get some benefits from it, but somethings obviously not right since we are still struggling.

Ray

Linden Oaks excepted

Linden Oaks excepted us! We are waiting on my insurance to hopefully do a single case agreement. We are still hoping this actually works. It is the only facility in our state that has excepted us.

Ray

JUST MY THOUGHTS

HI EVERYBODY,

IT’S AMILIA. I WISH I COULD SPEAK, BUT I CAN’T. I’M LISTENING OT A SONG CALLED SPEECHLESS. IT TALKS ABOUT NOT BEING SPEECHLESS ABOUT THINGS WE’VE BEEN THROUGH. I WANT TO BE ABLE TO TELL MY STORY SOME DAY I MEAN ACTUALLY SPEAK IT. I WANT TO BE ABLE TO HELP OTHER TEENS IN MY SITUATION WHETHER THEY BE INSIDERS IN OTHER’S SYSTEMS OR OTHER OUTSIDE TEENS. I’M 16 BUT FEEL MUCH OLDER THAN MY SIXTEEN YEARS. I’M JUST SADDENED THAT WE CAN’T GET THE HELP WE NEED AND MAYBE NEVER WILL. WWE WANT HELP, BUT CAN’T GET IT. IT’S SAD.

AMILIA

WHAT ABOUT US?

QUESTIONS TO PONDER AND MY THOUGHTS: FROM ENIGMA

SOO, I’VE BEEN THINKING, WHAT ABOUT US WHO ARE UNDERWEIGHT AND SUFFERING MEDICALLY BUT WHO HAVE GOVERNMENT INSURANCE LIKE MEDICAID? LIKE WHEN THERE IS NOTHING IN THE STATE TO TREAT OUR EATING DISORDERS? WHAT DO WE DO THEN? THEY ALWAYS SAY THAT IT’S THE PEOPLE IN BIGGER BODIES THAT GET STIGMATIZED AND DISMISSED, BUT WHAT ABOUT THEE DOCTORS THAT DON’T WANT TO FIGHT OUR INSURANCE COMPANIES BECAUSE IT TAKES TO MUCH OF THEIR TIME? WHEN DO WE GET HELP? WHY DO WE HAVE TO BE TOL BY INSURANCE COMPANIES THAT THEY KNOW THE RISKS OF EATING DISORDERS, BUT THAT SOMETIMES PEOPLE JUST DIE BECAUSE THE SERVICES THEY NEED AREN’T COVERED? WHY DO WE HAVE TO SUFFER WITH LOW LAB VALUES BECAUSE THE INSURANCE COMPANY WANTS TO SAVE A FEW DOLLARS? WHAT ABOUT OUR LIVES? DON’T THEY MATTER? THE MEDICAL DIRECTORS WHO ARE MAKING THESE DECISIONS DON’T ACTUALLY GET TO MEET THE ONES WHO THEY ARE MAKING DECISIONS ABOUT. THEY JUST MAKE DECISIONS BASED ON WHAT THEY SEE ON PAPER. THEY MAKE A DECISION ABOUT COVERAGE FOR A MENTAL ILLNESS BASED ON PHYSICAL FINDINGS. IS ANYONE WILLING TO FIGHT FOR US, THE UNDERSERVED? OR, ARE WE TO “COMPLEX” FOR YOU TO EVEN TRY? WHO WILL TAKE THAT LEAP OF FAITH TO HELP US ON OUR RECOVERY JOURNEY? ALL WE ARE ASKING FOR IS HELP, AND I THOUGHT THAT WAS SUPPOSED OT BE OK. PEOPLE SAY TO NOT BE AFRAID TO ASK FOR HEP, BUT NOW THAT WE FINALLY ARE, WE’RE BEING TOLD WE ARE TO COMPLEX.

ENIGMA

from emmie TW eating disorder

trigger warning: eating disorder

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not eating makes me feel safe. i dont know why but it does. We were only allowed to have a certain number of calories growing up and now i freak out when we go over that amount, it’s like its a PTSD trigger… not sure if this makes sense.

i dont eat so i dont remember. i know the others eat but then i feel guilty cause i use laxatives… i feel like such a failure. i just wanna do things 12 year olds do. Why? Why me?

Emmie

Dietitian appointment yesterday feeling very invalidated

So, yesterday, we went to see our dietitian. As soon as I walked in, and she weighed me, she said well, what are you doing right this time? I knew by that comment that I had gained weight. I then showed her the appeal letter that my attorney had written, and she said that it was a little intense when she had talked about the risk of me dying. I just thought it was really invalidating. It only reinforces the belief that we are not sick enough. Plus, the others don’t feel comfortable coming out around her because she always says that she is not the therapist when the slightest hint of that is happening. Anytime we try to talk about things related to Food, she said we need to talk about what you’ve eaten or what you haven’t eaten. I just wish there was more to the dietitian appointment than that.

Ray

I hate insurance!

So, we still have no updates from our insurance company. They want us to do an assessment at an ophthalmologist in St. Louis which is like three hours away. So it’s going to be three hours there in three hours back just for them to say that we are blind and that is not changing. Six hours for that? It’s ridiculous! We also found out that they still have not found a psychiatrist to do the insurance companies assessment of things as they put it. They said the psychiatrist were based on availability. By the time they get the assessment set up, it could be too late. This is just ridiculous! We want treatment!

Ray