NATIONAL SYSTEM PRIDE DAY!!!

So today is national system pride day. It was set up by the Entropy system on YouTube. You need to be proud of your system and for what they ‘be helped your survive. They all deserve to know that they are appreciated. Show them love and do something to make them feel appreciated. Play with your littles or write them notes if you don’t have good communication. And don’t forget to check out the Entropy system on YouTube!!

Dietitian appointment

Hi everyone,

So we had our dietitian appointment on Friday, and it was good news but not good news. They said their program was not going to be enough to help me that we needed an inpatient level of care and they would document that. We have a place that has excepted us, but Medicaid refuses to pay. I don’t know what we are going to do if we can’t get them to pay. We are essentially without a dietitian and an eating disorder therapist for now. Not sure what’s next, but this road is so long and confusing and scary.

Ray

thoughts from Nikki

DO YOU SEE ME? DO YOU HEAR ME? I FEEL SO ALONE IN THIS world WHERE I HAVE TO SHARE A BODY WITH SO MANY OTHERS THAT NO ONE ON THE OUTSIDE SEES. I JUST WANT TO BE ME. I JUST WANNA BE SIXTEEN. IS THAT TO MUCH TO ASK? AM I ALLOWED TO BE THE TEENAGER I NEVER GOT TO BE?

NIKKI

despair

So just got a message from our PCP that River Oaks isn’t an option and that our only options were Passavant psych unit which won’t accept us, and to follow up with our psychiatrist for the other medical issues. We’ve basically been told that the one place in the country that can help us with all our issues isn’t an option because of insurance. don’t even know why I even try.

Ray

asking for help feels hopeless and fruitless…

asking for help doesn’t seem to produce any results. none of the three doctors who said they would make the referral have done it… dont even have the energy to use exclamation marks anymore… my dietitian referred me to the weight loss and wellness program which supposedly has an eating disorders team, but there are no medical doctops overseeing their ED patients. my team has basically given up on me except my therapist, but the insurance won’t accept a referral from my therapist, because it has to be a doctor who makes the referral. My PCP and psychiatrist both aren’t seeing us for 2 months. i dont know what to do or say…

Ray

how?

how do you eat when you don’t know how to nourish your body? how do you heal from something so profound that it changes your life? how!!! i wish someone would tell me how!!! I wish we could get help!!! we can’t do this alone!!!

Ray

Tired of getting my hopes up

Hi everyone,

So I’m tired of getting my hopes up only to have them – to again. I thought I was going to get to go to Renfrew in Chicago for eating disorder treatment. They recommended the residential program, so I assumed that they had that program at the Chicago location. I later looked at their website only to realize they did not have residential at that location. So even if they did do a single case agreement with my insurance, I would not be able to go as the residential location is in another state. I am done reaching out to people to ask for help only to be told that I can’t be helped or to be told by the insurance company that they’re not going to pay for something. I just wish something positive would happen! I don’t want to end up on the medical floor getting a feeding tube because insurance refuses to pay for the treatment that we need!

Ray

CANT do this!! just cant *tw*

so just found out that after all these years, insurance doesn’t even have all my diagnoses listed. They don’t even have PTSD. i basically have to be re-evaluated for everything!! just feel like ing crazy!!! i want out!!! i cant do this!!! this with the news that we got from our dietitian today, just to much!!!Ray

Therapy in a little bit

Hi everyone, We have therapy in like half an hour. Enigma needs to talk to him today about her feeling suicidal. I hope we have a good session. Ray