So today we had the hearing. We didn’t get the results we were hoping for. Meridian tried to throw some off-the-wall legal crap to derail our plans, and it worked. My attorney’s have to do more research to try to combat their arguments. The treatment center also said that a PHP program will not benefit us that we need residential treatment. My entire treatment team is angry with them, and Medicaid has some ludicrous laws about paying for residential treatment. I guess only Illinois has these laws. We are going to use the parody law argument to hopefully help our case. I really hope that something happens, or eventually we will be going to the media.
so I’m trying to get a new device called the BrailleNote Touch Plus. It’s a Braille tablet that will help me with productivity and keeping up my Braille skills. It also would be easier for me to type on because it uses a touch screen. It would be way easier on my joints. I know it is expensive, but I really need it to keep and maintain as much independence as possible. Even if you can’t donate, I wod appreciate it if you could share the link. Thanks.
So, we got some news yesterday that the appointment we were supposed to have on March 5 cannot happen because of insurance. When we were with Meridian, we had transportation, but now that we are on straight Medicaid, we don’t. So our appointment had to be moved to April 3. Our caseworker, your member Sarah? Haven’t seen her in a month, anyway, she is taking us on April 3 to see this doctor. The entire reason we got this new doctor was because insurance wanted the diagnoses to come from a doctor. So the appointment that was scheduled in January cannot happen until April. That’s a little ridiculous since it is just establishing care with the primary care provider. Anyway, the point of this email, we have not had homemakers for three weeks, and we have had help here and there from our friend Carol. Well, I did the dishes this morning! Didn’t have any issues with dizziness or my heart rate or anything. Feeling very accomplished. Later today, our Department of rehab services worker is coming to have us sign forms that she said she should’ve had a sign last time she saw us. It is going to reestablish our homemaker services. In other news, the appeal that we are trying to get against Meridian is going to be tricky because the rule that we had for months to file or request the appeal is a state rule, it’s not something the insurance company came up with, so we don’t know if we can get an extension. It’s looking like we can’t. Anyway, that four months is up on April 19. Once that is up, we cannot fight them anymore to get them to pay for treatment. We are hoping for the best.
We have 263 followers!!! OMG!!! So excited!!
I’m blogging from A BrailleNoteTouch. It’s pretty cool!!! I love it!!!!
I am currently talking to my friend Tori on Skype. She lives in Australia and Severus from anxiety as you will see by her blog which I will link below. She and she is an amazing person it was overcome so much. Please follow her at
So, I don’t know what to do about whats going on. Im dealing with three alters who are dealing with suicidal programming. I went shopping the other day and came back from shopping and found a bottle of Tylenol in my bag that I don’t remember buying. Every time I try to throw away the Tylenol, they take over and hide tit form me. Also found out that being locked up in the hospital is a trigger for the others, so cant go to the hospital. Also cant go to the hospital because the ER already told me that if I go there again for psych, we will be involuntarily committed to an institution. Also found out that I have another apartment inspection on the 15th and if I don’t pass it, they will begin eviction proceedings. Amilia thinks it would be beter to be dead than homeless…. Just don’t know what to do.
Y apartment inspection. I also cant get a PA for at least the next 8 months. I cant afford to lose this place. Don’t know what to do. The center for independent living cant help me. Im freaking out right now. I cant be homeless!!!!!!!!!!!!
So I have just learned that we are a system who suffered through MK Ultra abuse or mind control/programming. I found out that Amilia has been programmed by someone to kill us if things keep coming out that were meant to be hidden. I don’t know what to do about this. I just hope we can find treatment. I don’t know if there is treatment for this in IL. We have an appointment on Monday to see our therapist, but don’t think we will tell her right away as we think this is way over her head. I’m shocked at what I have learned, but I have also learned that I can’t let things shock me anymore, because we’ve already survived the worst things, the abuse. All I know is we need help, and people are turning a blind eye, no pun intended to our needs. I just hope we can get help and get it soon. There is a program through our local department of rehabilitation services program called the home services program. I know there in the process of that, but it could take up to six years for me to even get in. This program offers PA services, intermitent nursing care, medication monitoring through the PA, adult daycare, and respite services for people with disabilities under the age of sixty. We could really use some support right now as littles are freaking out, and some of the other insiders are still bent on this suicidal programming. I hope this has not triggered anyone.
So everyone told us that we could live independently, well myself, Rayette, I think you know what I mean. Well anyway, they told us this, and I believed it, but now I’m not so sure. The agencies that were supposed to help can’t. The living independent living center told me that they couldn’t provide the adaptive equipment that I needed until I was 65 because I didn’t qualify for the bureau of blind services program. My caseworker is less than reliable because she supposed to take me to doctors appointments and what not, but after my appointment, I have to find a ride home, because I get out of the appointment and find that she has left. Also when she makes appointments to meet with me she cancels at the last minute or calls me and tells me that she can’t come, or she comes and then tells me that she can only stay for a few minutes when I was prepared with a lot of information to give her or had a lot to talk to her about. The services coordinator of the apartment building that I live in was frustrated because she had to come in before she left for work to help me label my microwave so I could use it. I’ve had to resort to online 30 which I pay for out-of-pocket because my insurance won’t cover the therapy that I need. I get a medical reduction for this from the department of human services for my food stamps benefits, but I was supposed to have a live session with my therapist tonight, and I messaged her and she never replied so the session never happened. I’ve had to resort to online therapy sorry for the mistake, I’m using dictation on my phone.