Linden Oaks excepted

Linden Oaks excepted us! We are waiting on my insurance to hopefully do a single case agreement. We are still hoping this actually works. It is the only facility in our state that has excepted us.

Ray

When you have Medicaid and an eating disorder

When you have Medicaid and an eating disorder, it is next to impossible to find treatment if treatment is not available in your state. What the people at Medicaid either don’t realize or don’t care about is that 20% of anorexics will die. My insurance company told me that sometimes people died because they don’t cover the services they need when I told them this fact. So I am taking things day by day keeping an eye on my heart rate as sometimes when I walk it goes as low as 46 or even 43 bpm which is not normal for someone who is walking around the store. I just pray every day that my body does not decide to give out before I can be helped to get the treatment I so desperately need. I go to my providers who are scrambling and telling me to go to each other with no result because no one knows what to do to fight the monster that is Medicaid. All I hear from the emergency room is either go out of state for treatment or stay home and die. What is this world coming to? All I know are money hungry insurance companies who don’t care about the person but all they care about is the profit and the money they will save by not paying for someone’s much needed treatment. Actually, they are spending more money on crisis stabilization programs that I keep going in and out of when it would be far cheaper for them to pay for the treatment I need that would also be the most effective. Instead, they are constantly telling me that I need this or that for their appeal process and so we have been waiting for over a year languishing and suffering because they want to find a lower cost medically necessary alternative. I find it interesting that there a denial letter says the services that we are requesting are a non-emergent when in the appeal itself it says if we do not get treatment I am at risk of death. How is that not emergent? And the person who reviews the appeal is a psychiatrist, but do they specialize in eating disorders? The short answer is no. They also say that we need to find treatment at a lower cost medically necessary alternative which by the way is breaking state and federal parity laws. They cannot impose a fail first policy meaning they cannot tell us that we need to complete treatment at a lower level of care and fail first before they will approve a higher level of care. They are hoping that by drawing out this appeals process, we will give up trying, and even though there are some days that yes, we want to do just that, we will not. I just hope our body can hold out. Also, they say if we need immediate treatment to go to the local emergency room, but that is a dangerous thing to say because the local emergency room knows nothing about eating disorder treatment and will give a liter of fluid in one hour which for someone with an eating disorder can kill them. I do not nor will I ever understand the logic of a government insurance, and I almost wonder if this insurance company that is run by the government isn’t put in place to continue ritualistic abuse whose goal was for the person to die which is exactly what will happen if we do not get treatment. Coincidence? I think not. The only thing I wanted for Christmas this year was to get into treatment, but that is not going to happen. At least I will be around people I love. We have a long battle ahead of us, and we just hope that physically we can hold out to see it through.

Ray

Dietitian appointment

Hi everyone,

So we had our dietitian appointment on Friday, and it was good news but not good news. They said their program was not going to be enough to help me that we needed an inpatient level of care and they would document that. We have a place that has excepted us, but Medicaid refuses to pay. I don’t know what we are going to do if we can’t get them to pay. We are essentially without a dietitian and an eating disorder therapist for now. Not sure what’s next, but this road is so long and confusing and scary.

Ray

Intake with eating disorders therapist

So, we had an intake with an eating disorder therapist at the weight loss and wellness center. Apparently they have an eating disorder’s team. I’m supposed to see her every two weeks. I am seeing the dietitian there this coming Friday, and after that the clinical team will discuss the case to see what needs to be done from here. The therapist did say that inpatient would be ideal right now considering everything we have going on. Will keep you posted.

Ray

cookie?can’t i enjoy a damn cookie?

can’t i just enjoy a cookie? can’t i eat it without thinking about the calories? i hate this ED!!! It makes me sad because i feel i will never get the treatment I need. just feeling so hopeless.

Ray

It whirlwind of craziness and frustration

Hi everyone,

So we don’t have a therapist or a primary care provider. Was supposed to see the psychiatrist on the 18th which was my birthday, but got there and found out he was out sick. They said they tried to call me but they had the wrong phone number. Getting a new primary care provider on 13 August. The electrophysiologist we had left the practice so know how to see someone else so cannot get medications raised until we see him. How do you go to the ER this past Sunday to get fluids because blood pressure was 78/35. Yesterday morning it was 72/27 but I can’t go to the ER every time it’s low. Just wish this craziness with Stup. So basically right now for support we just have our dietitian and another lady who is helping us through an organization called beauty after bruises. Every therapist I have tried to call has said that there are either too far away, can’t work with my insurance, or didn’t think they could work with my issues because they are so complex. Because I have postural orthostatic tachycardia syndrome, the anorexia does not make that any better, but how am I supposed to get treatment when no one wants to work with my insurance and my insurance doesn’t want to pay for the programs that can help!

Ray

FAKE SMILE

im tired of pretending everything’s ok. my meds aren’t working. my ED is out of control. my whole system is in chaos. i also found out today that residentil ED treatment isn’t an option. i tried applying to a free Christian residentil program for women called Mercy Multiplied, and they said that because of having DID, it makes me unsta and it’s more than they are equipped to treat. They say they treat trauma, but they don’t handle the most complex form of it. Guess I was have to accept that there is no help.

Ray