No psychiatrist and no primary care again?

Hello everyone,

So we officially have no primary care provider and no psychiatrist. Yesterday I called to check on an appointment and they told me that I transferred out of that medical group with my primary care provider as his patient which I did not do. No one can tell me what the hell is going on. Then I spoke to my psychiatrist nurse who told me that he agreed that I needed a higher level of care, but then half an hour later I get a call from his secretary saying that I don’t meet criteria for any of the diagnoses that I have been diagnosed with in his opinion. I don’t understand how after three times of seeing me in one year he can say this when the appointments have only been 15 minutes with the exception of the first appointment which was 40 minutes. How can he discount something such as anorexia when the signs are clearly there? What did we do to deserve this? I don’t know what we are going to do now. Now we are not being medically monitored for the eating disorder.

Ray

Dietitian appointment

Hi everyone,

So we had our dietitian appointment on Friday, and it was good news but not good news. They said their program was not going to be enough to help me that we needed an inpatient level of care and they would document that. We have a place that has excepted us, but Medicaid refuses to pay. I don’t know what we are going to do if we can’t get them to pay. We are essentially without a dietitian and an eating disorder therapist for now. Not sure what’s next, but this road is so long and confusing and scary.

Ray

asking for help feels hopeless and fruitless…

asking for help doesn’t seem to produce any results. none of the three doctors who said they would make the referral have done it… dont even have the energy to use exclamation marks anymore… my dietitian referred me to the weight loss and wellness program which supposedly has an eating disorders team, but there are no medical doctops overseeing their ED patients. my team has basically given up on me except my therapist, but the insurance won’t accept a referral from my therapist, because it has to be a doctor who makes the referral. My PCP and psychiatrist both aren’t seeing us for 2 months. i dont know what to do or say…

Ray

WHY?

WHY CAN’t I ENJOY A DAMN PIECE OF PIE? DAMN THIS ED!!! I JUST WANT THE DAMN PIE!!! BUT, THE FUCKING CALORIES!!! DOES IT EVER GET BETTER? JUST FEELING SO DAMN HOPELESS!!!! I ¬†WANT THAT DAMN PIECE OF PIE!!!

ENIGMA

Just Because I Eat Sweets Doesn’t MEAN I’m Not Anorexic

When I am around friends or when ‘more alone and I’ve starved for a while, I get a craving for something sweet. When I’m with my friends, they say, “Oh, so you’re better now because you’re eating a cookie!!!” Hell no, I’m not anywhere near recovered. Just because I eat sweets doesn’t mean I’m not still anorexic. I hate stereotypes!!

Ray

Is recovery worth it?

This is the question that I’m wondering today. It’s the question that’s swirling around in my mind as I sit and think about all of the obstacles that are stacked against us. The doctors who say we need treatment but who are not willing to fight the insurance company. All these treatment facilities that we call that say they cannot take us because we have Medicaid. And this is the question that remains in my mind. Is recovery really worth it? I feel like it’s a losing battle as my doctor told me the other day. He said this was going to be a losing battle at best. Could really use some encouragement and or support. Any feedback is welcome negative or positive. I just need a jumpstart to continue this process a recovery because right now I really want to give up.

Ray

Low Energy And Feeling Hopeless

Hi everyone,

So I went to my doctor on Monday, and he said that my weight was stable… BMI is 15.5. He said he’d see me in two months.

Also, had a conversation with my caseworker, and she said, “your dietitian isn’t going to let you die.” I told her it’s not about “letting” me die. There are things with eating disorders that can’t be seen visibly with like labs and stuff. She also takes things so personally!!

My doctor didn’t take labs, and hasn’t since June. He’s not taking them again until he sees me in two months. I just don’t know. Guess I’ll just wait for nothing to happen. I’m trying to eat. I really am, but it feels impossible. Any support would be greatly appreciated.

Ray

what is for insurance for anyway?

what the hell is insurance for? if they won’t pay for the treatment you need? I was even told by someone from the insurance company that sometimes people die because they don’t cover the services they need!!! Like what the hell??? i don’t know anymore. if something doesn’t happen soon, I will become one of the 20% of anorexics who die.

Ray

cookie?can’t i enjoy a damn cookie?

can’t i just enjoy a cookie? can’t i eat it without thinking about the calories? i hate this ED!!! It makes me sad because i feel i will never get the treatment I need. just feeling so hopeless.

Ray

a breakthrough!!!

so i have really good news!!! we’re very highly likely going to be going to be going to Aloria Health to go to treatment for the eating disorder. we’re filling out an application for Project Heal today and have already done the intake and hopx to hear back from Aloria today as to if we got in or not. Also, we get to keep our Social Security benefits and sece it’s not being paid for by insurance, there isn’t a limit on how long we get to stay there. i just have to go today to the indccpendent living center so someone can help us fill out the applicaity. Has anyone ever been to Aloria? What was your experience? So excited to start my recovery journey!!

Ray