me wants choclate but it makes our tummy hurt. me really really wants choclate!!!! not fair! why tumy hav to be hurting? why jus why?Lila
Trigger warning medical not sure……So, yesterday, we called our primary care providers office and asked her for help. We asked if they could place an NJ tube, but she said that she could not do that. She had said we had to wait for the G.I. consult on March 20. She wants us to drink three protein shakes per day diluted with water to make them easier to swallow as well as eating three full-size meals per day. This is nearly impossible. We can barely manage some days to eat some applesauce and some chicken broth. Why can’t we just get help? I also found out why I haven’t been seeing my dietitian. My primary care provider never sent in a referral to her when I switched providers. So I have not seen her since January 7. I called her and asked her for her advice yesterday, and I asked her if she could prescribe a feeding tube, and she said if it was eating disorder related, maybe. She told me to also wait for the G.I. consult. I am just getting so frustrated at this point. I just need nutrition! Dammit!Ray
I just got the results of my gastric emptying study, and after 240 minutes or 4 hours, I had 82% food contents left in my stomach. I’m kind of shocked!! So, I have severe gastroparesis.
TW medical . . . . . . . So, I spoke to Alsana today, and they do not take people with feeding tubes. They said if i got a feeding tube, I would need a higher level of care. I also spoke to Eating Recovery Center, and they said that they do feeding tubes on a short-term basis. So, basically, if I needed a feeding tube long-term because of gastroparesis, no place would accept me. So once again, we don’t fit into a box of criteria. So why even try to get into treatment? Also, Medicaid is coming up with a list of places they believe will meet my needs, and they are giving that to Meridian next week, so we don’t even get a choice in the places they choose. Everything just feels out of my control!!! Eating disorder programs don’t understand chronic illness, and I was even told by Alsana that in eating disorder treatment programs, you have to eat food, and if I went there, they would need a menu of foods from my GI team that I could eat, because i couldn’t have a tube during programming. The thing is, I can’t take the only motility med they prescribe which is Reglin. She also said that people on feeding tubes are just existing, not living. I’m half tempted to ask Megan to stop pursuing the eating disorder treatment. Ray
HI ITS AMILIA. I’M JUST SO FULL OF FOOD!!! I HATE THIS!! I KNOW THAT I NEED TO EAT, BUT ITS JUST SO MUCH!!! I KNOW WE NEED HELP, BUT I’M JUST SO AFRAID!!!
tags[alters, DID, anorexia, ED, dissociative identity disorder, eating disorder, mental illness, mental health]
I made these today. Let me know what you think of how they look. I bet they’ll taste amazing!
So, I’m going !my doctor on Monday. My care coordinator from my insurance -pany will be there. My caseworker will also be there. This doctor isn’t reY a doctor. She’s a nurse practitioner. I’m just afraid she’ll say I’m not sick enough clinicY for eating disorder treatment. I’m also apprehensive that the program we’re going to at OSF will know how !help us. Guess you could say, it’s hard for us !trust professionals.
So, my psychologist just terminated me. He said it’s because I can’t let go of my beliefs about food. He only had 8 sessions with us. Now we have no one who specializes in DID or ED. Also, our psychiatrist’s office told me yesterday that they don’t work with patients with ED. If I want to get any kind of treatment, I have to go to Chicago for subsidized housing which the waiting lists are long for. They range between 6 months to a year or longer. Just feel so lost, defeated, alone, and depressed.
TRIGGER WARNING: TALK OF FOOD
Sso just ordered from papa johns. I ordered a chocolate chip brownie with caramel seasalt icing and some cheese sticks. I deserve food. I deserve to eat. I deserve nourishment. My body deserves it. It may not be the healthiest, but at least it’s food. I’m proud of myself!!!!