Hi everyone, We have therapy in like half an hour. Enigma needs to talk to him today about her feeling suicidal. I hope we have a good session. Ray
So we’ve been in the hospital for like 10 days. Insurance was going to stop paying today anyway. We were supposed to have a psychiatrist appointment today, but the appointment got deleted from my caseworkers computer, so she can’t take me. Had to reschedule the appointment, but the next time he was available wasn’t until August 2. So I just got out of inpatient and have to wait until then to see him. While in the hospital, they put us on eating disorder protocol for like two days and then took us off because we were eating 50% of our meals. Was told by a psychiatrist that if I did not learn to control my dissociation I was never going to get better. He is a freaking jerk! My therapist I had there was really nice and was trying to do everything he could to get us to help we need, but the insurance company instantly shut him down when he was asking about the program in Louisiana. They said they had no funding. I find that hard to believe when they just paid for a $30,000 inpatient psych stay. This is so frustrating! I guess we are just going to have to do things on our own from now on. We are trying to meet with a different therapist who works in the same practice as Misty, but not sure how that’s going to work. Meeting with my caseworker today in my apartment. Hoping that goes well. When I got home, I had to straighten my house because my kitty cat made quite a mess while I was gone. He is back to his lovable self, and I woke up this morning to him sleeping beside me on the couch. I have an air mattress, but I’m going to have to buy a new bed because the mattress keeps losing air for some unknown reason. Well in the hospital, the staff were really triggering. They were talking about their diets and their low-calorie foods and drinks. I asked them to stop, and they said, “this is not an eating disorder is unit, you’re just going to have to deal with it. “Overall, a negative experience in the hospital. The doctor and therapist did what they could. We saw three psychiatrists while you are there. Sorry if there any mistakes in this post, I’m using dictation. Tiger just me out to say hi to you all. How is everyone today? I will be posting a YouTube video later with an update.
I don’t even know where to start. This whole trying to get help in reaching out is beyond frustrated because everyone is saying there’s nothing they can do. Insurance is saying I don’t meet criteria, yet I continue to lose weight. The crisis center and other hospitals aren’t excepting us because of the complex medical issues the trauma and the visual impairment. I feel like I am complaining and then I shouldn’t do that. I was told by a very trusted friend that he didn’t believe in SR a. He said it was my reality but that he didn’t believe in it. I don’t even know where I can go for support anymore. The one hospital that will except us we cannot get to because no one is willing to drive us. We are such a burden that no one is willing to drive us 45 minutes to get the help we need actually maybe it is an hour and a half, but still! We just want help, is that too much to ask?
So the insurance company has denied the prior authorization for river oaks in Louisiana. They say that there is not enough clinical information in the authorization for them to approve it. I am going to have to ask my psychiatrist to send in an authorization which is another one for them to approve or deny. If they deny this one, then we don’t have anywhere else to turn. We don’t have anywhere to go if we are not feeling safe at his new place is more except us at all. Spoke to my therapist earlier, and she got frustrated with me because our conversation was more than five minutes long. Also tried calling back a few minutes ago to speak with another case manager, and the receptionist said you know they’re busy they have other clients. I just don’t see how these people got their job to begin with with the abrasiveness of their attitudes.
So, how is everyone doing today? We’re doing ok today. Still feeling suicidal though, but we’ll have to make the best of it. Have to fake it till we make it. All I know is that I can’t keep going like this. We’re continuing to lose weight. Not sure how much longer I can keep doing this. I just feel so alone. I could really use a friend. Just feeling really defeated. I want to cut. I’ve never done that before. T’i always been Amilia. Not sure why I want to do it. Does this mean I’m a failure? I hate myself. I don’t want to live. My mood is all over the place. I hate this. I hope this insurance says yes. I really really hope they do.
So I got some good newsfffff!!! I’m so excited. The insurance got the prior authorization for River Oaks. Now it’s just a waiting game. Hope it goes through. They said we would have to do ED stabalization first before we can do the trauma part of the program. So beyond excited.
I’m not ok. Dr. Bland took us off all meds. No one will help us. Our team isn’t answering my calls or returning them. I’m not sure what to do. I can’t go to the ER. They send us home even after suicide attempts. They don’t care.
I now weigh 99 pounds. I’m 5 ft. 4. I just can’t do this anymore!!!
So we’re in the ER again. We haven’t been here for three months. Just couldn’t handle the meds not working. The system was going down fast. I was actually on lockdown because I couldn’t cope. Now it’s just a waiting game to see if anyone accepts us. I texted our insurance care coordinator to tell her that they needed to pay for the treatment I needed not subpar treatment. I will keep you updated if I can. Thanks for reading and all your support.
So, my PCP told me that I was not sick enough for treatment for my ED. She said, “you’re physically healthy, you’re at the lower end of normal BMI, your labs look good (they were taken a month ago), insurance probably wouldn’t even pay for an intensive outpatient program or for just outpatient therapy. “She just said to eat six small meals a day (For snack size meals and 1/2 container of ensure twice per day). So basically, none of the professionals on my treatment team are taking things seriously. When they where you at the doctors office, they don’t even take the weight off for the weight of your clothes, so they do not get an accurate picture of how much you weigh. I just don’t know what to do. I can’t go to residential because my insurance doesn’t cover it. She asked me which behaviors and I had and I told her I restricted my food intake, and she said well you’re not anorexic or bulimic, and restricting alone won’t get you into inpatient (like restricting is less of an issue then purging). I’m just so frustrated because I went in today looking for answers, and I got nothing. Makes me want to recover less and less. Makes me want to get to that “sick enough “where people actually take me seriously. It’s sad that we have to do that.
So, we just had therapy. We discussed the fact that even through everything that I or the others have done to try and kill the body, we are still alive. He told me that I need to acknowledge that I and others, (thghgh sometimes not everybody) have the will to keep fighting and that we are still surviving after everything we’ve been through. He also said that we can’t expect professionals who haven’t been helpful in the past to suddenly change and do what they’re supposed to do. He the is so much stigma and that we’re not going to erase it all. He wants me to draft a document that we have made as a plan so that if we have to go to the ER we can show it to the doctors. He encouraged me that I would prevail and that recovery has its ups and downs. He says that no one is perfect and I can’t hold myself to standards that are to high for me to meet. He wants me to make a daily goal in regards to the eating, but if I don’t meet it, he wants me to accept it for what it is. He says we take each day as it comes.