Home from inpatient

We are home from inpatient. We are already struggling. Some others inside are already using behaviors. We contacted a residential treatment center who has worked with our insurance before, and when we told them that we were discharged straight back to outpatient with no one who specializes in eating disorders, they were completely flabbergasted. They said we never should’ve skipped three levels of care. We are going to be seeing a therapist who specializes in eating disorders online. We will take anything we can get at this point, because even she says we are still any vulnerable. With our health. We were only there for 2 1/2 weeks. We made a lot of art pieces while we were there. We liked the art therapy and the dance movement therapy, but we were not allowed to talk about why we were struggling with meals because it was trauma related. We were not allowed to be ourselves there. I guess we did get some benefits from it, but somethings obviously not right since we are still struggling.

Ray

Linden Oaks excepted

Linden Oaks excepted us! We are waiting on my insurance to hopefully do a single case agreement. We are still hoping this actually works. It is the only facility in our state that has excepted us.

Ray

WHAT ABOUT US?

QUESTIONS TO PONDER AND MY THOUGHTS: FROM ENIGMA

SOO, I’VE BEEN THINKING, WHAT ABOUT US WHO ARE UNDERWEIGHT AND SUFFERING MEDICALLY BUT WHO HAVE GOVERNMENT INSURANCE LIKE MEDICAID? LIKE WHEN THERE IS NOTHING IN THE STATE TO TREAT OUR EATING DISORDERS? WHAT DO WE DO THEN? THEY ALWAYS SAY THAT IT’S THE PEOPLE IN BIGGER BODIES THAT GET STIGMATIZED AND DISMISSED, BUT WHAT ABOUT THEE DOCTORS THAT DON’T WANT TO FIGHT OUR INSURANCE COMPANIES BECAUSE IT TAKES TO MUCH OF THEIR TIME? WHEN DO WE GET HELP? WHY DO WE HAVE TO BE TOL BY INSURANCE COMPANIES THAT THEY KNOW THE RISKS OF EATING DISORDERS, BUT THAT SOMETIMES PEOPLE JUST DIE BECAUSE THE SERVICES THEY NEED AREN’T COVERED? WHY DO WE HAVE TO SUFFER WITH LOW LAB VALUES BECAUSE THE INSURANCE COMPANY WANTS TO SAVE A FEW DOLLARS? WHAT ABOUT OUR LIVES? DON’T THEY MATTER? THE MEDICAL DIRECTORS WHO ARE MAKING THESE DECISIONS DON’T ACTUALLY GET TO MEET THE ONES WHO THEY ARE MAKING DECISIONS ABOUT. THEY JUST MAKE DECISIONS BASED ON WHAT THEY SEE ON PAPER. THEY MAKE A DECISION ABOUT COVERAGE FOR A MENTAL ILLNESS BASED ON PHYSICAL FINDINGS. IS ANYONE WILLING TO FIGHT FOR US, THE UNDERSERVED? OR, ARE WE TO “COMPLEX” FOR YOU TO EVEN TRY? WHO WILL TAKE THAT LEAP OF FAITH TO HELP US ON OUR RECOVERY JOURNEY? ALL WE ARE ASKING FOR IS HELP, AND I THOUGHT THAT WAS SUPPOSED OT BE OK. PEOPLE SAY TO NOT BE AFRAID TO ASK FOR HEP, BUT NOW THAT WE FINALLY ARE, WE’RE BEING TOLD WE ARE TO COMPLEX.

ENIGMA

why DO I HAVE TO SUFFER?

*Trigger* mentions weight

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why do we have to continue to suffer? i dont know. all i know is 20% of anorexics die!!! one person dies every 62 minutes from an eating disorder. I’m 76% of my ideal body weight. what more does my body have to go through? why do my issues be so complex? my issues are keeping me from getting into treatment!!! i just hate this!!! sometimes, i dont care and just want to end my suffering! my heart rate has gotten as low as 43 and as high as 159, and no, i wasnt excercising. what the hell do i have to do to get the help i need?

i cant just go to the ER for fluids because of malnourishment because if i go to the ER, they bollis a liter of fluids in an hour which can cause heart failure. and i cant eat what i’m supposed to to gain weight, because of the risk of refeeding syndrome which can be fatal!! i really feel like i’m in a lot of catch 22s. Like what am i supposed to do? I have lost 80 pounds in the last year!!! i’m just so damn lost!!!

Ray

Intake with eating disorders therapist

So, we had an intake with an eating disorder therapist at the weight loss and wellness center. Apparently they have an eating disorder’s team. I’m supposed to see her every two weeks. I am seeing the dietitian there this coming Friday, and after that the clinical team will discuss the case to see what needs to be done from here. The therapist did say that inpatient would be ideal right now considering everything we have going on. Will keep you posted.

Ray