WHAT THE HELL DO I HAVE TO Do TO GET TREATMENT??

what do i have to do to get treatment? we went to the new psychiatrist, and he basically said that he couldn’t help us. He also said that DID is just exaggerated BPD. he said that meds won’t help me and recommended that I continue to meet with my therapist and he’s not seeing us anymore. so much for providers actually listening to us!!! i mean, some of my providers have said that if i don’t get treatment, I will die! they don’t care!!

Ray

why DO I HAVE TO SUFFER?

*Trigger* mentions weight

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why do we have to continue to suffer? i dont know. all i know is 20% of anorexics die!!! one person dies every 62 minutes from an eating disorder. I’m 76% of my ideal body weight. what more does my body have to go through? why do my issues be so complex? my issues are keeping me from getting into treatment!!! i just hate this!!! sometimes, i dont care and just want to end my suffering! my heart rate has gotten as low as 43 and as high as 159, and no, i wasnt excercising. what the hell do i have to do to get the help i need?

i cant just go to the ER for fluids because of malnourishment because if i go to the ER, they bollis a liter of fluids in an hour which can cause heart failure. and i cant eat what i’m supposed to to gain weight, because of the risk of refeeding syndrome which can be fatal!! i really feel like i’m in a lot of catch 22s. Like what am i supposed to do? I have lost 80 pounds in the last year!!! i’m just so damn lost!!!

Ray

My day yesterday and possible legal action

Hello everyone,
So yesterday I called River oaks to ask them if we could do the appeal, and they said they could not because they’re Dr. house to do a peer to peer with meridians medical director, and this cannot be done because they’re Dr. has not seen me. I then called (Meridian) to inquire about other methods, and they said I could not do the appeal that the facility had two. They said we had to do it by today which is not possible. Somehow they have it in their records that I was discharged from river oaks. I don’t know how that is because I have never been there. I contacted an organization called equip for a quality and then working with an advocate named Megan. I told her what my BMI was and how I was being treated by the medical system, and she was shocked. I’m going to see a new primary care provider this morning in about an hour, and hoping that goes well. Maybe she can do the appeal? I’m not sure though, but I can only hope at this point. I am pretty sure we are going to have to sue meridians/Medicaid. Hope everyone has a good day.
Ray
Sent from my iPhone

despair

So just got a message from our PCP that River Oaks isn’t an option and that our only options were Passavant psych unit which won’t accept us, and to follow up with our psychiatrist for the other medical issues. We’ve basically been told that the one place in the country that can help us with all our issues isn’t an option because of insurance. don’t even know why I even try.

Ray

what is for insurance for anyway?

what the hell is insurance for? if they won’t pay for the treatment you need? I was even told by someone from the insurance company that sometimes people die because they don’t cover the services they need!!! Like what the hell??? i don’t know anymore. if something doesn’t happen soon, I will become one of the 20% of anorexics who die.

Ray

Tired of getting my hopes up

Hi everyone,

So I’m tired of getting my hopes up only to have them – to again. I thought I was going to get to go to Renfrew in Chicago for eating disorder treatment. They recommended the residential program, so I assumed that they had that program at the Chicago location. I later looked at their website only to realize they did not have residential at that location. So even if they did do a single case agreement with my insurance, I would not be able to go as the residential location is in another state. I am done reaching out to people to ask for help only to be told that I can’t be helped or to be told by the insurance company that they’re not going to pay for something. I just wish something positive would happen! I don’t want to end up on the medical floor getting a feeding tube because insurance refuses to pay for the treatment that we need!

Ray

It whirlwind of craziness and frustration

Hi everyone,

So we don’t have a therapist or a primary care provider. Was supposed to see the psychiatrist on the 18th which was my birthday, but got there and found out he was out sick. They said they tried to call me but they had the wrong phone number. Getting a new primary care provider on 13 August. The electrophysiologist we had left the practice so know how to see someone else so cannot get medications raised until we see him. How do you go to the ER this past Sunday to get fluids because blood pressure was 78/35. Yesterday morning it was 72/27 but I can’t go to the ER every time it’s low. Just wish this craziness with Stup. So basically right now for support we just have our dietitian and another lady who is helping us through an organization called beauty after bruises. Every therapist I have tried to call has said that there are either too far away, can’t work with my insurance, or didn’t think they could work with my issues because they are so complex. Because I have postural orthostatic tachycardia syndrome, the anorexia does not make that any better, but how am I supposed to get treatment when no one wants to work with my insurance and my insurance doesn’t want to pay for the programs that can help!

Ray

CANT do this!! just cant *tw*

so just found out that after all these years, insurance doesn’t even have all my diagnoses listed. They don’t even have PTSD. i basically have to be re-evaluated for everything!! just feel like ing crazy!!! i want out!!! i cant do this!!! this with the news that we got from our dietitian today, just to much!!!Ray

insurance denied the authorization

So the insurance company has denied the prior authorization for river oaks in Louisiana. They say that there is not enough clinical information in the authorization for them to approve it. I am going to have to ask my psychiatrist to send in an authorization which is another one for them to approve or deny. If they deny this one, then we don’t have anywhere else to turn. We don’t have anywhere to go if we are not feeling safe at his new place is more except us at all. Spoke to my therapist earlier, and she got frustrated with me because our conversation was more than five minutes long. Also tried calling back a few minutes ago to speak with another case manager, and the receptionist said you know they’re busy they have other clients. I just don’t see how these people got their job to begin with with the abrasiveness of their attitudes.

Ray