So today is national system pride day. It was set up by the Entropy system on YouTube. You need to be proud of your system and for what they ‘be helped your survive. They all deserve to know that they are appreciated. Show them love and do something to make them feel appreciated. Play with your littles or write them notes if you don’t have good communication. And don’t forget to check out the Entropy system on YouTube!!
No psychiatrist and no primary care again?
Hello everyone,
So we officially have no primary care provider and no psychiatrist. Yesterday I called to check on an appointment and they told me that I transferred out of that medical group with my primary care provider as his patient which I did not do. No one can tell me what the hell is going on. Then I spoke to my psychiatrist nurse who told me that he agreed that I needed a higher level of care, but then half an hour later I get a call from his secretary saying that I don’t meet criteria for any of the diagnoses that I have been diagnosed with in his opinion. I don’t understand how after three times of seeing me in one year he can say this when the appointments have only been 15 minutes with the exception of the first appointment which was 40 minutes. How can he discount something such as anorexia when the signs are clearly there? What did we do to deserve this? I don’t know what we are going to do now. Now we are not being medically monitored for the eating disorder.
Ray
Dietitian appointment
Hi everyone,
So we had our dietitian appointment on Friday, and it was good news but not good news. They said their program was not going to be enough to help me that we needed an inpatient level of care and they would document that. We have a place that has excepted us, but Medicaid refuses to pay. I don’t know what we are going to do if we can’t get them to pay. We are essentially without a dietitian and an eating disorder therapist for now. Not sure what’s next, but this road is so long and confusing and scary.
Ray
thoughts from Nikki
DO YOU SEE ME? DO YOU HEAR ME? I FEEL SO ALONE IN THIS world WHERE I HAVE TO SHARE A BODY WITH SO MANY OTHERS THAT NO ONE ON THE OUTSIDE SEES. I JUST WANT TO BE ME. I JUST WANNA BE SIXTEEN. IS THAT TO MUCH TO ASK? AM I ALLOWED TO BE THE TEENAGER I NEVER GOT TO BE?
NIKKI
Intake with eating disorders therapist
So, we had an intake with an eating disorder therapist at the weight loss and wellness center. Apparently they have an eating disorder’s team. I’m supposed to see her every two weeks. I am seeing the dietitian there this coming Friday, and after that the clinical team will discuss the case to see what needs to be done from here. The therapist did say that inpatient would be ideal right now considering everything we have going on. Will keep you posted.
Ray
Therapy today
So, we had therapy today, and it was very exhausting. After I write this post, I am going to sleep. I am drained. I don’t remember most of the session, but I do know that Amelia made a safety plan. Maybe the others will write more about the session later, I’m not sure. Sorry we haven’t posted in a while. Just been very busy. We got excepted into river oaks, but now have to fight the insurance company. Just thought I would update you all.
Ray
despair
So just got a message from our PCP that River Oaks isn’t an option and that our only options were Passavant psych unit which won’t accept us, and to follow up with our psychiatrist for the other medical issues. We’ve basically been told that the one place in the country that can help us with all our issues isn’t an option because of insurance. don’t even know why I even try.
Ray
asking for help feels hopeless and fruitless…
asking for help doesn’t seem to produce any results. none of the three doctors who said they would make the referral have done it… dont even have the energy to use exclamation marks anymore… my dietitian referred me to the weight loss and wellness program which supposedly has an eating disorders team, but there are no medical doctops overseeing their ED patients. my team has basically given up on me except my therapist, but the insurance won’t accept a referral from my therapist, because it has to be a doctor who makes the referral. My PCP and psychiatrist both aren’t seeing us for 2 months. i dont know what to do or say…
Ray
Just Because I Eat Sweets Doesn’t MEAN I’m Not Anorexic
When I am around friends or when ‘more alone and I’ve starved for a while, I get a craving for something sweet. When I’m with my friends, they say, “Oh, so you’re better now because you’re eating a cookie!!!” Hell no, I’m not anywhere near recovered. Just because I eat sweets doesn’t mean I’m not still anorexic. I hate stereotypes!!
Ray
Is recovery worth it?
This is the question that I’m wondering today. It’s the question that’s swirling around in my mind as I sit and think about all of the obstacles that are stacked against us. The doctors who say we need treatment but who are not willing to fight the insurance company. All these treatment facilities that we call that say they cannot take us because we have Medicaid. And this is the question that remains in my mind. Is recovery really worth it? I feel like it’s a losing battle as my doctor told me the other day. He said this was going to be a losing battle at best. Could really use some encouragement and or support. Any feedback is welcome negative or positive. I just need a jumpstart to continue this process a recovery because right now I really want to give up.
Ray
