a breakthrough!!!

so i have really good news!!! we’re very highly likely going to be going to be going to Aloria Health to go to treatment for the eating disorder. we’re filling out an application for Project Heal today and have already done the intake and hopx to hear back from Aloria today as to if we got in or not. Also, we get to keep our Social Security benefits and sece it’s not being paid for by insurance, there isn’t a limit on how long we get to stay there. i just have to go today to the indccpendent living center so someone can help us fill out the applicaity. Has anyone ever been to Aloria? What was your experience? So excited to start my recovery journey!!

Ray

Tired of getting my hopes up

Hi everyone,

So I’m tired of getting my hopes up only to have them – to again. I thought I was going to get to go to Renfrew in Chicago for eating disorder treatment. They recommended the residential program, so I assumed that they had that program at the Chicago location. I later looked at their website only to realize they did not have residential at that location. So even if they did do a single case agreement with my insurance, I would not be able to go as the residential location is in another state. I am done reaching out to people to ask for help only to be told that I can’t be helped or to be told by the insurance company that they’re not going to pay for something. I just wish something positive would happen! I don’t want to end up on the medical floor getting a feeding tube because insurance refuses to pay for the treatment that we need!

Ray

Long talk with insurance care coordinator

So just had a long talk with the care coordinator whose over behavioral health for my insurance. She told me that residential definitely wasn’t an option, and she also said that if inpatient ED treatment was need that it wasn’t covered either. She’s concerned about the amount of re losing, but the things she could recommend were outpatient. She wants my team to all have a conference call to discuss the future of my treatment. I told her I would do my best to work with them even though they keep blowing us off. She said we needed to focus on the ED right now and the other stuff later. I guess that’s going to have to work for now. Every time something comes up in therapy about dissociation or an alter comes out to talk, my therapist is litterally speechless. I just feel like I’m running into briak walls everywhere we turn. I mean, heck, even my PCP said I wasn’t sick enough for treatment. So if oupatient doesn’t work, we’re screwed. I don’t even know what to say anymore.

Ray

Just got back from the hospital today

So, we just got back from the hospital. It was a frustrating experience. Everyone there was recommending residential treatment, but Medicaid won’t cover it. I know reallistically that I can’t afford to lose more weight but there are times when I just want to keep losing. I know it’s not a good idea. Also, my therapist wants me to bring in information for her about my DID and the ED. I can’t do her job for her. I’m not qualified to train her. She has no one to refer me to as no one around here has any experience working with DID or ED that takes Medicaid.

Meridian even director involved in my case, and they still said no that they wouldn’t cover residential. They even said that if we needed inpatient ED treatment that they wouldn’t pay for that either. I tried to get into Timberline Knolls, but that’s a long story. Here goes.

So a few weeks ago, I called TK to see about going there as my insurance said that they could do a one time single case agreement with them. I told them I was blind, and they said that they had to take it to their board of directors. I then did the intake asesment, and they said that there was no reason why I shouldn’t be able to get in. They then called me the next day and said that they couldn’t accept me because of the number of alters I have. That was a bullshit excuse. I honestly think it was just another excuse for them to cover up the whole blindness thing. Just not sure what to do.

Ray

Not sick enough?

So, my PCP told me that I was not sick enough for treatment for my ED. She said, “you’re physically healthy, you’re at the lower end of normal BMI, your labs look good (they were taken a month ago), insurance probably wouldn’t even pay for an intensive outpatient program or for just outpatient therapy. “She just said to eat six small meals a day (For snack size meals and 1/2 container of ensure twice per day). So basically, none of the professionals on my treatment team are taking things seriously. When they where you at the doctors office, they don’t even take the weight off for the weight of your clothes, so they do not get an accurate picture of how much you weigh. I just don’t know what to do. I can’t go to residential because my insurance doesn’t cover it. She asked me which behaviors and I had and I told her I restricted my food intake, and she said well you’re not anorexic or bulimic, and restricting alone won’t get you into inpatient (like restricting is less of an issue then purging). I’m just so frustrated because I went in today looking for answers, and I got nothing. Makes me want to recover less and less. Makes me want to get to that “sick enough “where people actually take me seriously. It’s sad that we have to do that.

Good news about doctors and insurance therapy update and psychiatrist stuff

So, my doctor has agreed to see me even with my current insurance. they’re going to do this until either they get contracted to take my insurance or until I switch plans. This is really good news as it will allow me to stick with a Doctor Who understands my needs and complexities. I have a psychiatrist appointment this afternoon, and the clinic is writing off the cost of this appointment because of the insurance situation. Also, my therapist told me that I’m just going to have to learn to use the resources that I do have in regards to my eating disorder, and she also told me to ask the psychiatrist when I go to see them today about ways that I can go about getting further evaluated for the dissociative issues because she said she is not qualified to do those evaluations. I asked her what I was supposed to do if it got to a point where things are medically unstable and I needed more than just inpatient treatment, and she said that I was just going to have to get medically stable and then work with the other stuff on an outpatient basis. I just don’t want things to go downhill and then I not have the support that I need to properly deal with things and then end up going back into a relapse. The other thing that has me worried is that the medication I am on currently is not working like I think it should. One reason for this I think, is because the medication is not out an effective dose to make a lot of a difference. Also, the medication I am on for anxiety is not working. I’m going to talk to the psychiatrist today and see if there’s anything you can do in regards to that. I know they cannot give me anything that is lethal because of the risk of either me or the other alters overdosing on the medication. I know that the borderline personality disorder poses a risk and is a barrier to me actually getting what might help in treatment. I have an appointment in a few hours with my primary care provider because in order to fill the prescription for the ensure that she wrote, I have to have an a valuation by her which she then submits to the durable medical equipment supply store so that they can determine whether they will fill the prescription or not. Ivan have an appointment this afternoon with my psychiatrist to discuss what we are going to do after he leaves. I hope that they don’t have a weight requirement for the ensure prescription to be filled. Also, tomorrow morning my caseworker is taking me shopping, and then after that I am meeting with the care coordinator from my insurance company to do the paperwork so that we can get homemaker services started. She said those it should be started by the end of next week and that I should get roughly 20 hours per week. Also, in therapy yesterday, we discussed on the service reasons for why are use my eating disorder as a coping mechanism. It’s because I feel like so many things are out of my control and it is one way that I can control things. I hope this all makes sense, and thanks for reading.

Ray