hopeful update about the appeal

So got an email from Megan yesterday, and it said.. they will be sending a draft of their appeal letter to their supervisor and finalizing it, and then they will send us a copy. God, i hope this appeal goes through and we finally get treatment.. Should know something by Monday or Tuesday if they got the appeal and then the hearing has to be scheduled with the state. That could take a few months, but hope not!! we just need a break!! i hope against all hopes and odds that we will finally get the help we need!! 

Ray

I hate insurance!

So, we still have no updates from our insurance company. They want us to do an assessment at an ophthalmologist in St. Louis which is like three hours away. So it’s going to be three hours there in three hours back just for them to say that we are blind and that is not changing. Six hours for that? It’s ridiculous! We also found out that they still have not found a psychiatrist to do the insurance companies assessment of things as they put it. They said the psychiatrist were based on availability. By the time they get the assessment set up, it could be too late. This is just ridiculous! We want treatment!

Ray

Update on how we are doing trigger warning talk of eating disorder

Trigger warning

So, we went to our dietitian appointment today, and our dietitian has said she is cutting our appointments to half an hour instead of a whole hour because there is nothing she can really do because our eating disorder is so ingrained. We were in the car earlier with one of the drivers from our insurance company, and she asked me why I needed a dietitian because I am not very big. I then told her I was anorexic, and she said she wished she was anorexic. I’ve been told her that anorexia is not a lifestyle choice. I don’t think she realized the implications of her comment, but she still shouldn’t have said anything. We still have no updates from the insurance company, and I am refusing to call my care coordinator anymore because every time I call her she has no new information. So we are playing the hurry up and wait game. It’s very frustrating. We are doing the best we can with what we have. We thank all of you for your ongoing and continued support love and patience.
Ray

why me? *tw*

*triggers talk of ritual abuse*

T

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Why was I allowed to escape? Why weren’t the other kids allowed to be free? Why did they have to die or continue to be programmed? Why just why??? Why did we have to kill those children? Why did we have to do those horrible things? I feel so guilty!!!

Ray

Always live to inspire.

Daphne

Hi my name is Daphne. Im 5. I luv peple. I luv da color blue. Me no lik memries. Me jus wanna be hapy. Me lik all you peple on heer. Luv you all.

Daphne

So so much *tw*

Hi everybody.

This is all to much. I dont wanna die!! We are really underweight. I want help, but no one will help us!! Feels like we have no control!! I dont like not having control!!! I dont know what to do. I just… dont know!! Just want to block everything out!!! Just so much anxiety!! So much pain… just so sad… so so sad.. just so tired… want the dreams to stop… just want it all to stop!!!
Emmie 12

At the ER again…

So we are at the ER again for psych. I just don’t understand why my insurance has to be so damn stupid!!! This is. Continuous cycle that needs to stop!!! We’re not really fixing the issue. We’re just glossing over it with a temporary band-aid.

Ray

IT’S ALL ABOUT RESPECT AND THAT’S AL THERE ISS TO IT!!!!

I’ve asked people to call me Raycand that hasn’t beeen respected by everyone. I feel like i shouldn’t be allowed to have the right to be called Ray when my “name” is Rayette legally.

That name waas used in abuse to trigger us. The question remains: what if I were transgender? Would you still not respect my name preference? I guess i shouldn’t stand up for myself to ask people to call me Ray because it doesn’t seem like eeveryone respects that request. It makes me really sad because every time someone calls me Rayette, it sends us into flashbacks and that’s not cool on top of everything we have going on. Sorry for the rant.

Ray