Trigger warning weight and food and medical our psych appointment

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So, yesterday, we had our psychiatrist nurse practitioner appointment. We were talking to her and discussing our situation. We told her there were no more medications they could try for motility issues. She said it is super frustrating to feel like you’re not even in control of your own body. I told her that yes this is exactly how we all felt. I told her we wished they would just put in a feeding tube already because we are so exhausted from all of this. Even drinking water makes us feel nauseous. We don’t really know what to do. We are already down to 92 pounds, and our dietitian said that if we got below 90 we would have to go back to inpatient for eating disorders. None of the other people on our team is recommending that. They said that with the other medical issues we have going on that if we had to go into a psych hospital, it would have to be one with medical facilities attached, and we don’t have many of those. None they will except us anyway. We are trying our best and doing what we can, but we don’t know if it will be enough. Our gastric emptying study isn’t until February 5.
Ray

Just because you’re on vacation TW trauma

Trigger warning: trauma 

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Just because we’re on vacation, doesn’t mean our trauma stuff stops. We shared a link that someone else on Facebook shared, and it was about child abuse, spacifically that a 13-ear-old girl had died giving birth to her father’s child. I posted about it to spread awareness. Of child abuse, and someone commented on the post telling me to take a break, that i was on vacation, and if she were on vacation, she wouldn’t post about such topics. Ugh!!! This person always likes to start drama no matter what i post. So frustrating. And other proof that your problems don’t just disappear when you’re on vacation, my heart rate was 143 when i got out of the shower even though i took my med before i got in the shower. So just because you’re on vacation, doesn’t mean your problems go away. Enough said. Rant over.
Dilia

from Lilianna a teen part TW

Trigger warning: trauma and PTSD

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Hi its Lilianna. im 13. i hate trauma. i hate remembering. i hate flashbacks. i know we need to weigh more. i know we are to thin. i dont know how to help with stuff. i am just not sure how to stay out of the memories. 

Lilianna

frum Raina TW me tinks me no kno

TW stuf? me not kno wat to putt
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me no lik dis nite. me no want da bad dreems. me no wanna go back der me hate dem bad peeples. no wanna go back der agin!!!!!!! it be so reel!!! not wanna tink abowt it!!! sumone hug me? me wants a mommy!!! me want a blanky!!! me want my dolly, but me no hav one!!!!! me no wanna be skard!!! me no lik the dark!!!
Raina 4

from Ray ER and depression and eating disorder?

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I don’t believe my low electrolytes the other night were because of our eating disorder. We have not used laxatives in approximately one month. The paramedics gave us 1 L of fluid in half an hour. Then they took our blood. We contacted the international Society for the study of trauma and dissociation, and they didn’t have any ideas for us either. Heard from our attorney yesterday that even with her closing argument, she did not think she could convince the hearing officer to force insurance to pay for our treatment. We cannot go back to Linden Oaks, we just cannot!!! They didn’t except us for who we were. They didn’t let us fully participate in art therapy because it did not fit their standard mold of how things should be. We could not talk about why we struggled with meals, so really, no real healing took place. We just wish there were something someone could do to help us. Just feels like we are trying to climb a brick wall with slippery wet stones and quicksand beneath our feet. We are trying so hard so so very hard. I just don’t know. I don’t know what else to say. For context, we had to go to the ER on Thursday afternoon and we were there for seven hours. They had to give potassium and magnesium through an IV. The paramedics gave us 1 L of fluids in half an hour and then when we got to the ER they took our blood, so no wonder our electrolytes are out of whack! The potassium going into the IV burned a lot. We could not take potassium orally as the oral tablets make us sick. Wish we didn’t have state-based insurances or that our issues weren’t so complex that we don’t fit into a nice neat little box and no one knows what to do with us. Wish we weren’t so broken!

Ray

trauma and depression

Trigger warning: depression and trauma
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Oh how I wish I could help Lacey. I know she struggling so so much. I just wish I could take away her pain. I wish I could take her out of the memories and flashbacks and take away the feelings. I wish I could help her want to live. She started out by protecting me, but now I am protecting her. How is that possible? I don’t know. I just know so many of us are in so much pain. I’m trying to hold things together as best I can.
Ray

struggling TW from Lacey

TW trauma and sadness
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im not ok. i hate memories. i hate flashbacks. im back there again. i dont wanna feel. i wanna be safe. i hate this. hate being so sad. just feels like a black hole. thoughts in my mind so bleak and dark… just wanna feel numb.. hate this time of year. it still feels like 2005. can hear my grandparents yelling and screaming.
Lacey 13

Update on how we are doing trigger warning talk of eating disorder

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So, we went to our dietitian appointment today, and our dietitian has said she is cutting our appointments to half an hour instead of a whole hour because there is nothing she can really do because our eating disorder is so ingrained. We were in the car earlier with one of the drivers from our insurance company, and she asked me why I needed a dietitian because I am not very big. I then told her I was anorexic, and she said she wished she was anorexic. I’ve been told her that anorexia is not a lifestyle choice. I don’t think she realized the implications of her comment, but she still shouldn’t have said anything. We still have no updates from the insurance company, and I am refusing to call my care coordinator anymore because every time I call her she has no new information. So we are playing the hurry up and wait game. It’s very frustrating. We are doing the best we can with what we have. We thank all of you for your ongoing and continued support love and patience.
Ray