Posted on

our stomach issues TW medical from Myra

TW medical and trauma

………..  
    
. 
. 
. 
. 
. 
Hello everyone,
It’s Myra. 
We’ve had stomach issues since we were about 16. When we lived with our aunt when we were 17, we threw up after a lot of times when we ate. We were under a lot of stress, so I’m not surprised. I’m pretty suffe we’ve been dealing with gastroparesis since we were a child. We also found out that we may have reverse motility issues to, because at 4 hours of our gastric emptying  study, we had 82% ofthe food left in our stomach, but at 3 hours, there was 81% left which says our intestines don’t work as they should. We want to go to Cleveland clinic, but lack the fudding. Does anyone know a way we can do a fundraiser for medical needs? We just want answers!!! We just want some hope. 
I’m tired of feeling sick. thanks for reading.
Myra 
Posted on

dietitian today TW

TW weight mentionedt
t
t
t
t
t
t
t
t
t
t
t
t
t
t
t
t
t
So we are going to see our dietitian this morning. We are just hoping she has some advice or anything really because we are down to 89 pounds. We are honestly scared… Don’t want them to force us back into eating disorder treatment as this is a physical medical issue. Eating disorders don’t cause gastroparesis this severe. Hoping for the best and some good news or advice. Hoping she doesn’t just say there is nothing she can do and we have to wait to see the GI doctor on the 20th.
Ray

Posted on

Spoke to our primary care providers office yesterday trigger warning medical

Trigger warning medical not sure……So, yesterday, we called our primary care providers office and asked her for help. We asked if they could place an NJ tube, but she said that she could not do that. She had said we had to wait for the G.I. consult on March 20. She wants us to drink three protein shakes per day diluted with water to make them easier to swallow as well as eating three full-size meals per day. This is nearly impossible. We can barely manage some days to eat some applesauce and some chicken broth. Why can’t we just get help? I also found out why I haven’t been seeing my dietitian. My primary care provider never sent in a referral to her when I switched providers. So I have not seen her since January 7. I called her and asked her for her advice yesterday, and I asked her if she could prescribe a feeding tube, and she said if it was eating disorder related, maybe. She told me to also wait for the G.I. consult. I am just getting so frustrated at this point. I just need nutrition! Dammit!Ray

Posted on

Trigger warning weight and food and medical our psych appointment

Trigger warning
.
.
.
.
.
.
So, yesterday, we had our psychiatrist nurse practitioner appointment. We were talking to her and discussing our situation. We told her there were no more medications they could try for motility issues. She said it is super frustrating to feel like you’re not even in control of your own body. I told her that yes this is exactly how we all felt. I told her we wished they would just put in a feeding tube already because we are so exhausted from all of this. Even drinking water makes us feel nauseous. We don’t really know what to do. We are already down to 92 pounds, and our dietitian said that if we got below 90 we would have to go back to inpatient for eating disorders. None of the other people on our team is recommending that. They said that with the other medical issues we have going on that if we had to go into a psych hospital, it would have to be one with medical facilities attached, and we don’t have many of those. None they will except us anyway. We are trying our best and doing what we can, but we don’t know if it will be enough. Our gastric emptying study isn’t until February 5.
Ray
Posted on

caseworker leaving TW maybe? food

TW just in case food…

t 
t 
t 
t 
t 
Hi everyone,
So our caseworker Sarah is leaving her job. She is going to be a care-coordinator for Meridian. This makes us very very sad. We will miss her. We also got hooked up with another person from Healthy Jacksonville. They’re going to try and get us a nurse during the afternoon to monitor our vitals, but there was a big emphasis on meals. The lady asked me how much weight i needed to gain, and then proceeded to talk about BMI, and I told her that BMI was aload of crap. I told her it didn’t determine a person’s health. I guess now they’re going to motitor how much we’re eating… They don’t understand that there are other physical issues going on besides the eating disorder. This is all so complicated. 
Ray 
Posted on

not ok *tw* ED and weight and suicide

hi its emmie. i dont want to do this anymore. i hate the food. i just cant!!! i wouldn’t mind getting down to 85 pounds or even 80. We’re already 92. or maybe we should just cram our mouth full and risk the refeeding thing. since the insurance or doctors don’t care anyway. just feeling low.

Emmie

Posted on

Low Energy And Feeling Hopeless

Hi everyone,

So I went to my doctor on Monday, and he said that my weight was stable… BMI is 15.5. He said he’d see me in two months.

Also, had a conversation with my caseworker, and she said, “your dietitian isn’t going to let you die.” I told her it’s not about “letting” me die. There are things with eating disorders that can’t be seen visibly with like labs and stuff. She also takes things so personally!!

My doctor didn’t take labs, and hasn’t since June. He’s not taking them again until he sees me in two months. I just don’t know. Guess I’ll just wait for nothing to happen. I’m trying to eat. I really am, but it feels impossible. Any support would be greatly appreciated.

Ray

Posted on

Needing Support

im struggling. i feel fat. i feel disgusting. I ate a bowl of Crave chocolate cereal, and now I feel guilty. So many calories. i know i need to eat, but why do i feel so guilty? God i hate tthis.

Ray

Posted on

SATURDAY THOUGHTS

Hi everyone,

Today, I’m struggling with ED thoughts. I’m struggling with restricting and counting I’m obssessed with my weight. I just need support.

Ray

Posted on

CHALLENGED MYSELF TODAY AND SUCCEEDED!!!!!

TRIGGER WARNING: TALK OF FOOD

Sso just ordered from papa johns. I ordered a chocolate chip brownie with caramel seasalt icing and some cheese sticks. I deserve food. I deserve to eat. I deserve nourishment. My body deserves it. It may not be the healthiest, but at least it’s food. I’m proud of myself!!!!

Ray