Trigger warning medical not sure……So, yesterday, we called our primary care providers office and asked her for help. We asked if they could place an NJ tube, but she said that she could not do that. She had said we had to wait for the G.I. consult on March 20. She wants us to drink three protein shakes per day diluted with water to make them easier to swallow as well as eating three full-size meals per day. This is nearly impossible. We can barely manage some days to eat some applesauce and some chicken broth. Why can’t we just get help? I also found out why I haven’t been seeing my dietitian. My primary care provider never sent in a referral to her when I switched providers. So I have not seen her since January 7. I called her and asked her for her advice yesterday, and I asked her if she could prescribe a feeding tube, and she said if it was eating disorder related, maybe. She told me to also wait for the G.I. consult. I am just getting so frustrated at this point. I just need nutrition! Dammit!Ray
Trigger warning weight and food and medical our psych appointment
Trigger warning
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So, yesterday, we had our psychiatrist nurse practitioner appointment. We were talking to her and discussing our situation. We told her there were no more medications they could try for motility issues. She said it is super frustrating to feel like you’re not even in control of your own body. I told her that yes this is exactly how we all felt. I told her we wished they would just put in a feeding tube already because we are so exhausted from all of this. Even drinking water makes us feel nauseous. We don’t really know what to do. We are already down to 92 pounds, and our dietitian said that if we got below 90 we would have to go back to inpatient for eating disorders. None of the other people on our team is recommending that. They said that with the other medical issues we have going on that if we had to go into a psych hospital, it would have to be one with medical facilities attached, and we don’t have many of those. None they will except us anyway. We are trying our best and doing what we can, but we don’t know if it will be enough. Our gastric emptying study isn’t until February 5.
Ray
caseworker leaving TW maybe? food
TW just in case food…
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Hi everyone,
So our caseworker Sarah is leaving her job. She is going to be a care-coordinator for Meridian. This makes us very very sad. We will miss her. We also got hooked up with another person from Healthy Jacksonville. They’re going to try and get us a nurse during the afternoon to monitor our vitals, but there was a big emphasis on meals. The lady asked me how much weight i needed to gain, and then proceeded to talk about BMI, and I told her that BMI was aload of crap. I told her it didn’t determine a person’s health. I guess now they’re going to motitor how much we’re eating… They don’t understand that there are other physical issues going on besides the eating disorder. This is all so complicated.
Ray
not ok *tw* ED and weight and suicide
hi its emmie. i dont want to do this anymore. i hate the food. i just cant!!! i wouldn’t mind getting down to 85 pounds or even 80. We’re already 92. or maybe we should just cram our mouth full and risk the refeeding thing. since the insurance or doctors don’t care anyway. just feeling low.
Emmie
Low Energy And Feeling Hopeless
Hi everyone,
So I went to my doctor on Monday, and he said that my weight was stable… BMI is 15.5. He said he’d see me in two months.
Also, had a conversation with my caseworker, and she said, “your dietitian isn’t going to let you die.” I told her it’s not about “letting” me die. There are things with eating disorders that can’t be seen visibly with like labs and stuff. She also takes things so personally!!
My doctor didn’t take labs, and hasn’t since June. He’s not taking them again until he sees me in two months. I just don’t know. Guess I’ll just wait for nothing to happen. I’m trying to eat. I really am, but it feels impossible. Any support would be greatly appreciated.
Ray
Needing Support
im struggling. i feel fat. i feel disgusting. I ate a bowl of Crave chocolate cereal, and now I feel guilty. So many calories. i know i need to eat, but why do i feel so guilty? God i hate tthis.
Ray
SATURDAY THOUGHTS
Hi everyone,
Today, I’m struggling with ED thoughts. I’m struggling with restricting and counting I’m obssessed with my weight. I just need support.
Ray
CHALLENGED MYSELF TODAY AND SUCCEEDED!!!!!
TRIGGER WARNING: TALK OF FOOD
Sso just ordered from papa johns. I ordered a chocolate chip brownie with caramel seasalt icing and some cheese sticks. I deserve food. I deserve to eat. I deserve nourishment. My body deserves it. It may not be the healthiest, but at least it’s food. I’m proud of myself!!!!
Ray
FRUSTRATED WITH MY PSYCHOLOGIST
Trigger Warning: Mention of weight and numbers
So my psychologist isn’t concerned about our ED. He said he doesn’t get concerned unless weight goes below 100 pounds. I’m only 9 pounds away from that. He told me to not make an emergency of something that’s not. I told him I didn’t have a dietician especially not one that specializes in ED, and he said I didn’t need a specialist. I told him that a person with an eating disorder can have medical complications even at a normal weight. He told me that for treatment places to accept me, I would have to be at death’s door. He’s basically telling me I’m not sick enough for treatment. Makes me want to cake things worse just to prove to people that I need treatment. I just don’t know anymore!!!
Ray
EATING DISORDER RECOVERY TIPS
Get rid of the scale!!!
You are not defined by the number on the scale. You are much more than that. I understand if you are trying to lose weight for health reasons, but you dont need to do it unhealthily.
Find someone you can talk to.
Having someone to talk to really helps me to know that I’m not alone. By the way, if anyone needs to talk, I’m here. You can email me at
rayetteddruckerblebc%gmail.com
Reach out for help!!
You want to nip an ED in the butt before it destroys you. I know an ED is all about control, but you want to take control of it before it takes control of you. I’ve been dealing with an ED for the last 17 years.
Join a support group.
I’m still learning to accept these tips myself, and I know there will be days when I struggle, but we all can overcome this. You are beautiful just the way you are. I believe in you. From no one else does, just remember my blog and that I believe in you. Stay strong and keep fighting no matter how hard it gets. There is a light at the end of the tunnel. I just felt like someone needed to hear that. What doesn’t kill you makes you stronger.
Ray
